May 5, 2008
I wish I could open up the super-highways in his brain, create a smooth and even flow of traffic. He stumbles over a word, literally tapping his head to shake it loose. “I know that word,” he says. “I just don’t know it now.”
Driving home from religion last week, he asked me,“Mom, you know that story about that person who visited the three sheppard children? I don’t remember who that person was.”
“You mean the Blessed Virgin? Mary?”
“Yeah, that’s the one.”
I wonder what he retains. What bits stay with him. Usually the things he shares with me are obscure, like the story of the Miracle of Fatima or the fact that subway trains are the lifeblood of the city—and he’ll use that word, lifeblood, as though it were a common word for six-year-olds.
The truth is, I don’t know how his brain works. I know that there are times when I think he is one of the wisest people I know, and there are times when he can’t tell me that 2 + 2 = 4. I lose a lot of sleep wondering what all this means. He’s already behind the curve, he isn’t reading. At least not consistently. Lately, that seems like our biggest challenge. Consistency—across the board.
When I think about Friday’s IEP meeting, the thing that unnerves me more than any other is that I wavered. I wavered in my belief and my faith in my son. I let myself question the big important stuff you are never supposed to question about your children—like is he smart? and, can he learn? It’s going to take me a long time to forgive myself for that.
The thing about these meetings, they are disheartening under the best of circumstances. And even when you get the outcome you were hoping for, it is never the outcome you want.
May 5, 2008 at 8:23 pm
It never is the outcome you want is it? I know exactly what you mean here.
M has her better days when it come to being able to get at her words. Some days she just can’t get them and she gets so frustrated.
I am so sorry this IEP has been such a tough one for you. I wish I could say they got easier for me but they did not. I became so tired with it all we did homeschooling. I wish I could have kept her in school and it would have went just great but it was no where near great. Not even just good.
Once out of school though we began to notice we focused less on what M could not do and more on what she can do. It has changed my outlook on everything. Homeschooling is not for everyone. I am certainly not saying that. If we could find a good school here she would be there.
Hang in there. Hugs.
May 5, 2008 at 9:20 pm
Your IEP experience sounds frustrating. I am sorry for that.
However, I think that many a mother has asked herself tough questions about her child. There’s no rule against that. Breaking the rules would mean that you decided the answer now and pigeon-holed him. Perhaps try to be a little less hard on yourself. Easier said than done, I know. Hugs.
May 5, 2008 at 9:20 pm
Oh Kristen! I’m sorry it was such a difficult meeting. I have been there. I, too, think it is the system — trying to match what is developmentally appropriate with a chronological age. It doesn’t always work so well. But you are such a strong advocate and loving mom — you will find your peace in all this. I am certain of it.
May 5, 2008 at 10:24 pm
That last line you wrote is so true.
And I too have been baffled by how a child can know a word one day and not recognize it the next.
Wish I had some words of wisdom but I can barely see straight these days. I’m thinking of you and sending hugs.
May 5, 2008 at 11:22 pm
Yes. What you said, Kristen.
Maybe the fact that there are the two of us (and others, too) who have these crises of faith should tell us that it’s not the deep betrayal we tend to think it is, in our sad moments.
May 5, 2008 at 11:34 pm
When doing Nick’s very 1st IEP we got to the “Strengths” section and his teacher (explaining the process as we went along) said, “that’s so we’re not focusing only on the negative things.” Uh huh.
Sure, we’ve just spent the last hour and a half discussing all of my son’s struggles, difficulties and shortcomings. Let’s add a few strengths on this here list to make us all feel a little better.
I’m quite certain she missed the *real* purpose of the strengths section.
Yeah, IEPs are a downer. No matter which way you cut it. Sending you a big hug.
May 6, 2008 at 12:49 am
This IEP sounds like it was a doozy. I’m sorry. wish I could comfort you. Does it help we hear you and understand?
May 6, 2008 at 8:43 am
Oh, Kristen, I hope you will forgive yourself soon (not that I think you need to) because everyone has doubts about their child at some time. I am sorry about GPs IEP (I guess the only good outcome is if there didn’t need to be one at all) and the struggles he and you are facing right now. Remember the ebb and flow, how many wonderful things that have happened this year.
I thought Scott would never make friends and now? He seems to have found his group. But at the same time he has turned into an anxious, OCD mess who gets sent home from school with a nervous stomach.
It just never seems to all go right.
Hang in there, only another month until summer!
May 6, 2008 at 9:24 am
A really, really wise friend told me recently that we all get our turn (more than once even!) for the good to come around. Okay, so I paraphrased, but you know what I’m saying… our turn is coming, sweetie. How can it not when our boys have such fiercely loving advocates?
The ebb and flow is enough to make one crazy but it’s a cycle we can weather together…all of us. xoxo
May 6, 2008 at 10:19 am
Kristen, I used to physically get ill (I’m talking throw up in the school bathroom) before those things. I often felt like the “strengths” section was lip service before they sort of gleefully raked me kid across the coals.
You are the expert on GP. You know his heart. I was watching “Autism: The Musical” AGAIN last night and I got to the part where Lexi’s mother says that she sometimes feel that in order to love her daughter, she wants to understand her brain.
I think we’ve all experienced that feeling. What I wrote yesterday - about gritting my teeth and looking at my kid with different eyes - well, it works. Look at all the things GP does IN SPITE of all the things going against him. That’s a strong, smart kid. Reading or no.
One last thing…the word retrieval. I used to be very hurt when my daughter did not register happiness when she saw me at pick up at school. I asked her about it the other day. She very calmly told me that back then, she couldn’t recognize faces.
Her own mother’s face.
How hard could that have been for her?
He’s working hard, Kristen. He will get there.
Sending you lots of love.
May 6, 2008 at 8:51 pm
Oh, Kristen. It is so hard to see your child struggle and even harder to hear about their struggles in those meetings. Your son’s potential is not limited to the words in that IEP.
Sending you hugs.
May 6, 2008 at 9:15 pm
I’m sorry it’s been rough. I agree that none of us is the first to have doubts about our child’s abilities - god knows I do frequently. IEPs, it seems, are designed to put us in this frame of mind.
May 7, 2008 at 12:07 am
In my mind’s eye, GP is not behind the curve. He’s on his own curve and in many ways I imagine it to be much more interesting.
May 7, 2008 at 6:00 am
Thanks, everyone, for the kind words and support. I’m lifted by your comments, and in a much better frame of mind today. I had a nice post-IEP meeting with the classroom teacher and a few others yesterday, and that lifted me up as well.
And Lisa, of course, you nailed it. I just don’t know why I lost sight of that truth. He’s not behind. He’s on his own path, and it IS much more interesting.
May 7, 2008 at 7:27 am
When my son was 6 I too fretted over his lack of academic progress. Luckily a friend, who is also a Psychologist, reassured me that we just needed him to be reading by the end of Grade 3. At first that did NOT make me feel better but he emailed me study after study and summarized findings for me that convinced me that as long as we were all doing what we could to facilitate his reading, he would eventually do it. Suddenly in Grade 2 he jumped 12 reading levels in 3 months.Historically he has these “brain bursts” as we call them, usually following a period of unease and instability, where we wonder if he is regressing and start to panic about his future. Then, just when we are sounding the alarm bells, he suddenly calms and not only regains the ground he lost but sprints forward, leaving us in the dust.
I just wanted you to know, I’ve been there. While we will always worry as moms I have to remind myself constantly that the only thing my worry will get me is lost time enjoying my son.
May 7, 2008 at 2:29 pm
you are such a strong and spirited mommy, kristen, i have no doubts about your son’s future. we can give that to each other, the unwavering faith about the other mother’s son and daughter because that’s the way the system works. i don’t know why but it just does. we waver on the surface about our own children even though deep down, our ground is solid. but up there, on the surface where we get tossed around by so many passing winds, we need to borrow the view’s of the other mothers until we reconnect with our own truth, like holding someone’s hand on the high wire.